Rachel and Evan make a move to the Northwest - for Providence ALS Center

Rachel Doboga and her husband Evan moved to Vancouver to be closer to our world-renowned Providence ALS Clinic. Rachel uses a wheelchair now, but she is standing up to the disease and fighting for a cure with everything she has.

Rachel Doboga is a dreamer, a dancer, a teacher, and an avid writer. Today, she is also forced to be a fighter.

Amyotrophic lateral sclerosis, or ALS, robbed Rachel of her mobility, her independence and her voice.

She was diagnosed with ALS at just 28-years old. She was a school teacher in Northern California teaching English to fifth and sixth grade students.

 

She and her husband Evan have now moved to Vancouver, Wash., to be near Providence ALS Center – a world-renowned ALS clinic and Oregon’s only Center of Excellence certified by the ALS Association.

“My doctors in California told me I might want to consider moving to Portland. There’s a doctor there who has the attitude that the story isn’t already written. Dr. Goslin gives me permission to hope,” Rachel said through her Tobi tablet, a speech tablet that tracks her rapid-eye movement to write out her thoughts.

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Rachel and Evan meet with Dr. Kimberly Goslin every three months to battle her disease.

Kimberly Goslin, M.D., Ph.D., neurologist and medical director, provides comprehensive care for people by using a multidisciplinary team of ALS specialists.

Her team includes a pulmonologist, registered nurse, social worker, dietitian, occupational therapist, physical therapist, speech/language pathologist, respiratory therapist, augmentative communication specialist and more.

“It’s one-stop shopping for ALS patients. It’s really become the gold standard in treatment,” says Dr. Goslin. “What they’ve shown is that kind of care increases life expectancy and quality of life.”

Dr. Goslin continues to fight for Rachel, Evan and her parents.

“I think a lot of doctors don’t see there is a lot you can do to help these people,” Dr. Goslin says.  “A more effective treatment is just around the corner. There’s just a lot happening in the research. I feel like there is a lot of reason to be hopeful.”