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Providence Together: Creating a Better Story

Sometimes there are no happy endings. Sometimes there are only better stories. Better because someone showed compassion. Better because someone helped a person maintain dignity through unimaginable circumstances.

Recommended Resource

Addressing respiratory changes

An ALS diagnosis is shocking and frightening, but as with any disease, knowledge is power. Being aware of symptoms and how you can prepare for – and manage – them is key to quality of life and often, for peace of mind.

ALS Association Oregon and SW Washington Chapter Website

The ALS Association's Oregon & SW Washington Chapter was founded in 2002 to serve the needs of those living with Amyotrophic Lateral Sclerosis and their caregivers.

Cure Progressive Supranuclear Palsy: Foundation for PSP, CBD and Related Brain Diseases

Progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA), are little-known but disabling brain diseases, often misdiagnosed as Parkinson's disease, amyotrophic lateral sclerosis (ALS), or Alzheimer’s disease.

The goals of CurePSP are to assist patients and their families, increase public awareness, educate healthcare professionals, and support research toward better diagnosis, effective treatments, and eventual cures.

National Organization for Rare Disorders

Website for NORD: National Organization for Rare Disorders

 

The ALS Association website

The ALS Association symbolizes the hopes of people everywhere that Amyotrophic Lateral Sclerosis will one day be a disease of the past – relegated to historical status, studied in medical textbooks, conquered by the dedication of thousands who have worked ceaselessly to understand and eradicate this perplexing killer.