Forms & Information

Recommended Resource

ClinicalTrials.gov Frequently Asked Questions

Choosing to participate in a clinical trial is an important personal decision. The following frequently asked questions provide detailed information about clinical trials. In addition, it is often helpful to talk to a physician, family members, or friends about deciding to join a trial. After identifying some trial options, the next step is to contact the study research staff and ask questions about specific trials.

ClinicalTrials.gov

ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals.

National Institutes of Health Office of Rare Diseases Research: Research and clinical trials

Links to Federal and non-federal information about research into rare diseases including ORDR-supported research. When you enter most of the Web sites listed below, you will leave the ORDR Web site. Please return to find more information about research resources, scientific conferences, genetics information and services, and other related information.